tuulavintage Jessica Stein

Wanderer in a past life 🍃 Mum to the strongest human. Learning to advocate for extremely rare chromosome disorders. Email [email protected] 🌻
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tuulavintage:

"Here's to strong women. May we know them. May we be them. May we raise them." 💪✨

81537 412 Jan 15, 2018
tuulavintage: A welcomed change of scenery for our first

A welcomed change of scenery for our first night away together, watching the ferries go by from our bed at ✨☁️

86858 361 Jan 11, 2018
tuulavintage: Our sunshine 🌸

Our sunshine 🌸

68911 539 Jan 9, 2018
tuulavintage: Our happy place 🌻

Our happy place 🌻

80858 338 Jan 8, 2018
tuulavintage: I have no idea how we

I have no idea how we've made it through this year. Looking back through photos and videos today brought us to tears, realising just how far Ru has come. There have been more challenges, isolation and grief than I could have ever imagined starting a family. No one wants to see their child suffer, let alone grow used to it. Pat and I are both physical and emotional wrecks, usually taking on the roll of nurse / carers rather than new parents, still sharing shifts each other night to watch her. But then she laughs.. her three toothed, honest laugh from the gut until she cries. And we remember how deeply blessed we've been, with more love and resilience than I thought humanly possible. We are so lucky that she came in to our lives this year and chose us. To teach us, every day. We know each year will bring new accomplishments and new battles but we can only hope the next brings her health, us hindsight, and happy times together. Thank you for everyone's support, with love for the new year from our little family to yours. ❤️

86116 1422 Dec 31, 2017
tuulavintage: It feels surreal to sit here with Ru

It feels surreal to sit here with Ru pulling at my hair, a year since I sat in this exact spot with her in my tummy. This was one of my only nearby places to escape to and feel a part of the world again when I finally got gate leave while on bed rest for several weeks in RNS Hospital. Living on the Maternity Ward has been one of my most challenging chapters of the past year, hearing newborn babies cry metres away while I was desperately trying to keep "barely viable" Ru inside with steroids, antibiotics, daily scans and constant CTG. I prayed for her to be a tough cookie, but really knowing her (and her strengths) now it all makes sense. I just wish I'd known it then, to be able to enjoy that part of the ride. 🌈

67739 442 Dec 29, 2017
tuulavintage: Happy every day, with love from our little

Happy every day, with love from our little Ru-dolph ❤️✨

96092 482 Dec 26, 2017
tuulavintage: Nothing beats summer nights at home with this

Nothing beats summer nights at home with this cheeky monkey 🐒💕

60897 323 Dec 21, 2017
tuulavintage: All we could ever want ❤️

All we could ever want ❤️

72320 390 Dec 20, 2017
tuulavintage: From exactly one year ago today, on the

From exactly one year ago today, on the last day of our road trip through New Zealand's South Island. We flew home the next day and started our wildest adventure yet... 🌱 A year of living in hospital, but now with our tiny little happy human making every moment more than worthwhile 💪✨

49821 251 Dec 16, 2017
tuulavintage: As most of you know we have spent

As most of you know we have spent majority of our year at hospital for our beautiful daughter Rumi. We have experienced overwhelming support and offers during the past week from so many people worldwide who want to give to the hospital. We have decided to postpone our original intimate afternoon get together until after Christmas and New Years, for a bigger and better night to accomodate more people at the spectacular Our eternal thanks to everyone who has helped so much already, and looking forward to sharing updated event details for the New Year ❤️

45398 234 Dec 14, 2017
tuulavintage: Ru with her Roo 💕🐨

Ru with her Roo 💕🐨

73703 591 Dec 13, 2017